CME Presentations
Rett Part 1
Presentations
Exploring the Evolving Role of the Neurologist within the New Care Paradigm in Rett Syndrome
Speakers: Henry Hasson, Child NeurologistCarmen Luna, MPH, Clinical Network ManagerDavid Lieberman, MD, PhD, Child Neurologist Duration: 60 minutes
Presented on: February 27, 2024
Speakers
Henry Hasson
Henry Hasson
Child Neurologist
Henry Hasson, MD is a child neurologist from Brooklyn, NY. After completing an undergraduate degree in chemistry at New York University, he earned his medical degree at Albert Einstein College of Medicine in the Bronx. He eventually completed fellowship training at the same institution, where he continued on as an assistant professor of neurology and pediatrics, before opening his private practice in Brooklyn, NY. Dr. Hasson holds board certifications from the American Board of Psychiatry and Neurology in neurology and clinical neurophysiology. He is affiliated with the Mount Sinai School of Medicine, Maimonides Medical Center, and the Albert Einstein College of Medicine.
Carmen Luna, MPH
Carmen Luna, MPH
Clinical Network Manager
Carmen Luna joined the International Rett Syndrome Foundation (IRSF) in 2021 to manage the newly formed Rett Syndrome Center of Excellence Network. Carmen is the Clinical Network Manager for the IRSF. She has over 10 years of research project management experience and worked at the Kaiser Permanente Colorado - Institute for Health Research prior to joining IRSF. As a mother of three, including a 6 year old daughter with Rett syndrome, Carmen is passionate about supporting clinics to facilitate and advance research to treat and cure Rett syndrome. She holds a Bachelor of Science degree from Miami University and a Master of Public Health degree from the University of Louisville.
David Lieberman, MD, PhD
David Lieberman, MD, PhD
Child Neurologist
David Lieberman, MD, PhD, is a child neurologist at Boston Children’s Hospital. Dr. Lieberman completed his medical and doctorate degrees in Neuroscience at Stanford University School of Medicine. He continued his training at Johns Hopkins University School of Medicine, completing an internship in Pediatrics and a residency in Pediatric Neurology. Dr. Lieberman remained at Johns Hopkins as faculty for a few years before moving back to the west coast to take a faculty position in the Neurosciences Department at UC San Diego. Dr. Lieberman moved to Boston in 2015 and now serves as the Director of the Comprehensive Rett Syndrome Program at Boston Children’s Hospital where he sees over 100 patients with Rett syndrome and Rett-related disorders each year.
CME Information
Exploring the Evolving Role of the Neurologist Within the New Care Paradigm in Rett Syndrome
This activity is jointly provided by Global Education Group and PlatformQ Health Education, LLC, in collaboration with the National Organization for Rare Disorders, Inc. (NORD) and International Rett Syndrome Foundation.ACKNOWLEDGEMENT
This activity is supported by an independent educational grant from Acadia Pharmaceuticals Inc.DATE OF RELEASE/EXPIRATION
This activity was released on February 27, 2024 and is valid until February 27, 2025. Requests for credit must be made no later than February 27, 2025.TARGET AUDIENCE
The educational design of this activity addresses the needs of neurologists, pediatric neurologists, and specialty NP/PAs involved in the treatment of patients with Rett syndrome.STATEMENT OF NEED/PROGRAM OVERVIEW
Newer therapies are now available for the treatment of Rett syndrome, but questions remain about how to integrate them into care, particularly in community-based settings. Join an expert panel – featuring a neurologist from an International Rett Syndrome Foundation (IRSF)-designated Rett syndrome center of excellence, a community-based neurologist, and a patient advocate from IRSF who will elucidate the central role of the neurologist in the care of patients with Rett syndrome. The panel will describe how to recognize and diagnose Rett syndrome and explore the latest findings on newly available treatment options and their place in team-based care. Case-based discussions will highlight strategies to overcome challenges faced by community-based clinicians and provide guidance for neurologists initiating treatment and working with the greater care team to monitor and manage adverse events, as well as when and how to refer patients to centers of excellence. This activity is the first in a larger three-part educational initiative aimed at bettering outcomes for patients with Rett syndrome.EDUCATIONAL OBJECTIVES
After completing this activity, the participant should be better able to:- Recognize early signs and symptoms of Rett syndrome to enable early diagnosis and treatment initiation
- Discuss recent therapeutic advances in Rett syndrome and associated impacts on patient care
- Describe the evolving role of neurologists in the management of patients with Rett syndrome
- Develop personalized management plans for patient with Rett syndrome
PHYSICIAN ACCREDITATION STATEMENT
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of Global Education Group (Global) and PlatformQ Health Education, LLC. Global is accredited by the ACCME to provide continuing medical education for physicians. PHYSICIAN CREDIT DESIGNATION
Global Education Group designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.ESTIMATED TIME TO COMPLETE
This activity should take approximately 1 hour to complete.INSTRUCTIONS TO RECEIVE CREDIT
In order to receive credit for this activity, the participant must (1) read the target audience, learning objectives, and disclosure statements, (2) complete the educational activity online, and (3) complete the post-test and activity evaluation. To receive AMA PRA Category 1 Credits™, participants must receive a score of 70% on the post-test.HARDWARE/SOFTWARE REQUIREMENTS
Participants will need a computer with a recent version of Adobe Flash installed, as well as an internet connection sufficient for streaming media.FEE INFORMATION & REFUND/CANCELLATION POLICY
There is no fee for this educational activity.DISCLOSURES OF RELEVANT FINANCIAL RELATIONSHIPS
Global Education Group (Global) adheres to the policies and guidelines, including the Standards for Integrity and Independence in Accredited CE, set forth to providers by the Accreditation Council for Continuing Medical Education (ACCME) and all other professional organizations, as applicable, stating those activities where continuing education credits are awarded must be balanced, independent, objective, and scientifically rigorous. All persons in a position to control the content of an accredited continuing education program provided by Global are required to disclose all financial relationships with any ineligible company within the past 24 months to Global. All financial relationships reported are identified as relevant and mitigated by Global in accordance with the Standards for Integrity and Independence in Accredited CE in advance of delivery of the activity to learners. The content of this activity was vetted by Global to assure objectivity and that the activity is free of commercial bias.
All relevant financial relationships have been mitigated.
The faculty have the following relevant financial relationships with ineligible companies:Name of Faculty or Presenter Reported Financial Relationship David N. Lieberman, MD, PhD
Child Neurologist
Boston Children's HospitalConsulting Fee (e.g., Advisory Board): Neurogene, Taysha Gene Therapies
Contracted Research (Principal Investigators must provide information, even if received by the institution): Acadia Pharmaceuticals Inc., Neurogene RTT-200 Clinical TrialHenry Hasson, MD
Child NeurologyNo relevant financial relationships to disclose Carmen Luna, MPH
Clinical Network Manager
International Rett Syndrome FoundationNo relevant financial relationships to disclose
The planners and managers at Global Education Group and PlatformQ Health Education, LLC have no relevant financial relationships to disclose.
DISCLOSURE OF UNLABELED USE
This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. Global Education Group (Global) and PlatformQ Health Education, LLC do not recommend the use of any agent outside of the labeled indications.
The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of any organization associated with this activity. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.DISCLAIMER:
Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed in this activity should not be used by clinicians without evaluation of patient conditions and possible contraindications on dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities.CONTACT INFORMATION
Accreditation Support:
For information about the accreditation of this program, please contact Global at 303-395-1782 or cme@globaleducationgroup.comTechnical Support:
For any technical issues or issues with your CME Certificate, please contact, NeuroSeriesLive, at 877-394-1306 or at Support@NeuroSeriesLive.com.
