CME Presentations

Pediatric Epilepsies


Presentations


Speakers

  • Nicole Villas

    Nicole Villas

    Nicole Villas

    Nicole Villas, board president and scientific director of the Dravet Syndrome Foundation, earned her bachelor’s degree in chemistry and master’s degree in science education from the University of Minnesota. She worked in research and development at the University of Minnesota and for a small wet chemistry company for several years before teaching chemistry and physics. Nicole has been using her scientific background to educate, empower, and support parents of children with Dravet syndrome since shortly after her youngest son’s diagnosis in 2008. Nicole also volunteers with the Epilepsy Foundation of Colorado in Greenwood Village, Colorado.
  • Kelly Knupp, MD

    Kelly Knupp, MD

    Kelly Knupp, MD

    Kelly Knupp, MD, is associate professor of Pediatrics and Neurology at the University of Colorado. She practices at Children’s Hospital Colorado in Aurora, where she is associate research director of Neuroscience Institute and director of the Dravet Program. Her interests are epileptic encephalopathies, including Dravet Syndrome and infantile spasms. Dr Knupp was a founding member of the Pediatric Epilepsy Research Consortium, which focuses on developing collaborative research nationally for children with epileptic encephalopathies. She serves on the medical advisory boards of the Epilepsy Foundation of Colorado, Round up River Ranch, and the Dravet Syndrome Foundation. She received her medical degree from the University of New Mexico School of Medicine in Albuquerque.
  • Meghan Wilson

    Meghan Wilson

    Meghan Wilson

    Meghan Wilson lives in Denver, Colorado with her husband and two children, Adele and Vivian. She has an undergraduate degree in biological sciences from the University of Pittsburgh in Pittsburgh, Pennsylvania and is a certified Project Management Professional (PMP). Meghan has been working in the field of clinical research for 20 years. In 2012, Meghan’s daughter, Vivian, was diagnosed with Dravet Syndrome, which prompted her to connect with the Dravet Syndrome Foundation (DSF). She was previously a DSF Parent Ambassador and currently leads a monthly support group for parents and caregivers of children with Dravet Syndrome.
  • Dagmar Amtmann, PhD

    Dagmar Amtmann, PhD

    Dagmar Amtmann, PhD

    Dagmar Amtmann, PhD, is a research associate professor at the University of Washington, Department of Rehabilitation Medicine in Seattle. Over the past 20 years, she has led or participated in numerous studies of health and quality of life of people with disabilities or chronic conditions. Dr Amtmann has interviewed parents of children with the Dravet Syndrome and other severe epilepsies living both in the United States and internationally about the stressors and benefits of taking care of children with epilepsy, and about the quality of life of caregivers of children with severe epilepsy.

CME Information

Humanistic and Economic Burden of Dravet Syndrome: Multidisciplinary Approach to Recognize and Address


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HCP CE EDUCATIONAL OBJECTIVES

After completing this activity, the participant should be better able to:

  • Recognize the psychosocial challenges and stress-related comorbidities of caregiving for a patient with Dravet syndrome
  • Explain why taking a multidisciplinary approach to addressing the needs of parents and siblings of patients with Dravet syndrome, is more meaningful including identification of sources of psychosocial support, caregiver/sibling relief, wellness interventions

CAREGIVER EDUCATIONAL OBJECTIVES

After completing this activity, the participant should be better able to:

  • List services and resources that can help address challenges in providing care for children with Dravet syndrome
This activity is jointly provided by Global Education Group and PlatformQ Health Education, LLC.

ACKNOWLEDGEMENT

This activity is supported by an educational grant from Zogenix, Inc.

DATE OF RELEASE/EXPIRATION

February 13, 2020 – July 31, 2021

TARGET AUDIENCE

HCP: The educational design of this activity addresses the needs of neurologists, pediatric neurologists, pediatricians and other health care professionals (including physicians, physicians-in-training, nurses, physician assistants, nurse practitioners, pharmacists, etc.) involved and/or interested in the management of patients with severe forms of pediatric intractable epilepsy.

Caregiver: The educational design of this activity addresses the needs of parents and family members who care for patients affected by severe forms of pediatric intractable epilepsy, particularly Dravet syndrome or LGS.

STATEMENT OF NEED/PROGRAM OVERVIEW

Dravet syndrome is a severe, intractable and difficult-to-manage epileptic syndrome, characterized by marked and prolonged clonic and tonic-clonic, generalized and unilateral seizures which progress to multiple seizure types, slowing development and cognitive abilities with comorbid behavioral disorders. Experts consider Dravet syndrome among the most challenging epilepsy syndromes to manage due to its intractable seizures, recurrent status epilepticus and intellectual disabilities. The significant burden of disease Dravet syndrome places on both patient and family/caregiver is profound. However, clinicians may not be intimately knowledgeable about its recognition, diagnosis, management and transition from pediatric to adult care and further limited on their recognition of the burden of disease and its adverse effects on quality-of-life in patients and families/caregivers dealing with Dravet syndrome and how best to address and support such individuals. Moreover, limited effective treatment options for Dravet syndrome adds to the clinical complexity of its management; newer, more effective treatment options are being investigated. Importantly, families/caregivers are often wholly unprepared to deal with the myriad of clinical and nonclinical issues that they will face on their journey. Accordingly, extensive education is needed to ensure that clinicians, families/caregivers have the resources they need to improve care and meet challenges throughout the continuum of care, from diagnosis, to treatment, to transition.

The activities comprising this educational initiative, of which this is the first, are altogether designed to improve knowledge and behaviors related to diagnosis, management, and overall care of Dravet syndrome and subsequently Lennox-Gastaut syndrome (LGS) while improving competence in their recognition, diagnosis, treatment and management of comorbidities and nonclinical issues. This activity will focus on the human and financial toll of caring for Dravet syndrome from both clinician and caregiver perspectives.

PHYSICIAN ACCREDITATION STATEMENT

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of Global Education Group (Global) and PlatformQ Health Education, LLC. Global is accredited by the ACCME to provide continuing medical education for physicians.

PHYSICAN CREDIT DESIGNATION

Global Education Group designates this enduring activity for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

NURSING CONTINUING EDUCATION

Global Education Group is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This educational activity for 1.0 contact hours is provided by Global Education Group. Nurses should claim only the credit commensurate with the extent of their participation in the activity.

PHARMACIST ACCREDITATION STATEMENT

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Global Education Group is accredited by the Accreditation Council for Pharmacy Education as a provider of continuing pharmacy education.

CREDIT DESIGNATION

Global Education Group designates this continuing education activity for 1.0 contact hour(s) (0.10 CEUs) of the Accreditation Council for Pharmacy Education. (Universal Activity Number - 0530-9999-20-003-H01-P)
This is a knowledge-based activity.

TERM OF OFFERING

This activity was released on February 13, 2020 and is valid for 17 months. Requests for credit must be made no later than July 31, 2021.

ESTIMATED TIME TO COMPLETE

This activity should take approximately 1 hour to complete.

INSTRUCTIONS TO RECEIVE CREDIT

In order to receive credit for this activity, the participant must (1) read the target audience, learning objectives, and disclosure statements, (2) complete the educational activity online, and (3) complete the post-test and activity evaluation. To receive AMA PRA Category 1 Credits™, participants must receive a minimum score of 70% on the post-test. For pharmacist/ACPE learners, please check the CPE monitor for your CE credit within 60 days of the activity.

SYSTEM REQUIREMENTS

Participants will need a computer with a recent version of Adobe Flash installed, as well as an internet connection sufficient for streaming media.

FEE INFORMATION & REFUND/CANCELLATION POLICY

There is no fee for this educational activity.

DISCLOSURE OF CONFLICTS OF INTEREST

Global Education Group (Global) requires instructors, planners, managers and other individuals and their spouse/life partner who are in a position to control the content of this activity to disclose any real or apparent conflict of interest they may have as related to the content of this activity. All identified conflicts of interest are thoroughly vetted by Global for fair balance, scientific objectivity of studies mentioned in the materials or used as the basis for content, and appropriateness of patient care recommendations.

The faculty reported the following financial relationships or relationships to products or devices they or their spouse/life partner have with commercial interests related to the content of this CME activity:

Name of Faculty or Presenter Reported Financial Relationship
Kelly G. Knupp, MD, MSCS
Associate Professor of Pediatrics and Neurology
University of Colorado, Anschutz Medical Campus
Grant/Research Support: West Therapeutics, Zogenix
Honoraria: Zogenix
Advisory Board: Biocodex, Biomarin, GW pharma (DSMB member), Zogenix
Dagmar Amtmann, PhD
Research Professor
University of Washington, Seattle
Department of Rehabilitation Medicine
Grant/Research Support: Zogenix (research grant support to university)
Nicole Villas, MEd
Board President/Scientific Director
Dravet Syndrome Foundation
Nothing to disclose
Meghan Wilson, BS
Parent of Child with Dravet Syndrome
Nothing to disclose


The planners and managers reported the following financial relationships or relationships to products or devices they or their spouse/life partner have with commercial interests related to the content of this CME activity:

Name of Planner or Manager Reported Financial Relationship
Ashley Marostica, RN, MSN Nothing to disclose
Lindsay Borvansky Nothing to disclose
Andrea Funk Nothing to disclose
Liddy Knight Nothing to disclose
Ashley Cann Nothing to disclose
David Howard Nothing to disclose
Alissa Yost Nothing to disclose

DISCLOSURE OF UNLABLED USE

This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. Global Education Group (Global) and PlatformQ Health Education, LLC. do not recommend the use of any agent outside of the labeled indications.

The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of any organization associated with this activity. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.

DISCLAIMER

Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed in this activity should not be used by clinicians without evaluation of patient conditions and possible contraindications on dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities.

CONTACT INFORMATION

Accreditation Support:
For information about the accreditation of this program, please contact Global at 303-395-1782 or cme@globaleducationgroup.com.

Technical Support:
For any technical issues or issues with your CME Certificate, please contact NeruoSeriesLive at 877-394-1306 or at Support@NeuroSeriesLive.com; NeuroCareLive at 877-394-1306 or at Support@NeuroCareLive.com; or RareDiseaseLive at 877-394-1306 or at Support@RareDiseaseLive.com